Monday, October 5, 2015
Breathing and baby and more, oh my!
Wednesday, September 23, 2015
Hyperemesis gravidarum sucks, but aspiration pneumonia on top of that sucks more!
So, the fact that I get some level of hyperemesis gravidarum during my pregnancies is no secret. It sucks, but I've suffered through it before and feel like even when it is really bad, the suffering is only temporary.
During past pregnancies, one of my personal "my hg is getting bad" limits is when I wake up from a deep sleep barfing on myself. It's usually a sign that I need to increase medication, I'm too dehydrated, or need other help. This pregnancy I developed an allergy to Zofran that I didn't have before, so that cut out the most typical treatment for HG, leaving me with 3 other meds for treatment. One of the meds I was put on, Reglan, can and has affected my heart some, and so I've been advised to take it only if absolutely necessary. As a result, I've been less likely to medicate myself for my nausea and vomiting during this pregnancy unless I know I'll have a very hard day or if I've puked more than 3 times in the first hour or so of the day. But, as a result, I haven't been medicating myself extra when I'm waking from my sleep with vomit in my mouth.
About 2.5 weeks ago, I caught a minor head cold that my kids had and the extra production of mucus triggered more and more vomiting. 15 days ago, at 5 pm, I had a high fever of 103 hit me suddenly and I was quickly in bed with chills. I still thought it could be cold related but maybe had gone to a sinus infection or bronchitis. I spent the next two days acutely ill with high fever and constant vomiting. Saturday evening I noticed my urine was very concentrated and I called my ob to go into the hospital for fluids. L&d treated me for severe dehydration, the ob didn't come in to examine me but I was advised to go to primary care on Monday.... so I did that. Primary care doc said I sounded awful and discussed the risks/benefits of a chest xray at 30 weeks pregnant and I decided to do the xray, which showed double pneumonia. I went on two antibiotics at home, and improved slightly within the first 24 hours and then continued to worsen. Saw primary care again on Thursday and he said I needed to go to the hospital. When l&d checked me in, my primary care had spoken to my ob, so they had a pulmonology Dr and infectious disease Dr ready to see me, and they've been carefully following me the entire time I've been here.
At first they were exploring a "is this community acquired pneumonia or aspiration pneumonia" route, but after more testing came back, the infectious disease doc said he was pretty certain this was aspiration pneumonia. I'm on day 7 in the hospital, and it is still very difficult for me to breathe. The last two days I've improved instead of worsened though, so I am very happy about that. Without doing more radiology testing, they can't say for sure if the pneumonia is completely gone, but it isn't showing up on xray anymore but there are areas on xray that show alot of scarring and areas where my lungs will just not inflate when I take a deep breath. The Dr explained it as how the lungs heal typically is they expand from the bottom and push the crud out, but because I have an almost full term baby pushing up against my lungs, my lungs are trying to expand but cant. They're just stuck spasming instead. the specialist doctors have been excellent though and have managed everything very well, I just work it was working faster even with their aggressive approach!
In my time here I've been on 3 iv antibiotics, that they've gradually transitioned to oral as I've shown improvement. I've been on high dose iv steroids to help the spasm, which right now they're trying to wean down to see how it goes or of I worsen with those going down. I've also been on every 4 hour breathing treatments of a bunch of different kinds. When they admitted me, they were pretty sure I'd end up in the icu and even put me in an icu bed in a regular room, but luckily so far I've been able to stay out of the icu. They said if my o2 sats are consistently below 95, they'll discuss the icu. I had one day, on Sunday, that they were in the mid to high 80s a couple days ago and they discussed oxygen briefly but were about to get them to increase with more steroids.
Through all of this, baby Robin is doing well. He's measuring nearly 4 pounds on ultrasound and he's 32 weeks gestation today! I can't believe we're still in this hospital, but even with how much I hate hospitals I know it's the best place to be seeing as I get winded just going to the bathroom. early induction or taking the baby early has been discussed some, but only as a measure if I worsen or if Robin isn't doing well from me being so bad. I tore a muscle in my abdomen on Saturday from coughing and l&d were in here in a rush and all sorts of possibilities were being discussed. The biggest concern was that my pain was coming from inside my uterus, not outside. Since all is still holding up well inside the uterus, Robin will stay there and continue to grow. But they are monitoring him very closely to make sure that doesn't change. Ina saw a newborn on the floor recently and said she wished Robin was out now and I was like, no no no. Then he would be in his own hospital room (the nicu). I'd rather him stay kicking away in my belly even if it means it is harder for my lungs to heal and harder for my to breathe.
Rob and the kids have come to visit daily, until yesterday as he and Ina are sick. Poor Ina is by far the most stressed out about me being in the hospital for so long so it doesn't surprise me that she is sick. It's been two days since I've seen Emmy, which stinks. She's so little she doesn't really understand, but rob says she asks for me alot. :( Rob and I got to celebrate our 10th wedding anniversary with me in the hospital here. I think we need a real celebration when I'm well! I've had many sweet visitors and appreciate all of them so much. Fr. Bernie came and gave me the anointing of the sick and I've had Jesus brought to me a few times too. <3
Thank you all for your continued prayers, love, help with childcare and meals! <3 I never could have imagined getting so sick while pregnant.... and this is coming from someone who barfs daily my entire pregnancies. Perspective... hg does definitely suck, but aspiration pneumonia, you win the suck award! You suck. But, we will get through this too.
Love <3
Sunday, August 16, 2015
Emily Louise 18 months
Happy 18 months tonight to my sweet Emily Louise! <3
You still fight sleep more than any baby I've ever known. Eighteen months of sleep fighting screaming anytime it's time for a rest. I do get it, you want to be awake constantly so that you can constantly take in every aspect of your surroundings. Your sleep hygiene has improved ever so slightly in the last two months, but by saying that I mean you sometimes once a week will remember you're a baby and actually take a nap, or you'll wake up only 4 times at night instead of 12. I'm sure one day I'll laugh remembering our years of no sleep together.
You are about to be a big sister in 3 months, but you really have no idea. Your baby brother Robin kicks you often when you're laying on my belly, but you either don't notice or you don't want to acknowledge that he's there.
You finally passed 20 lbs recently, but you're still my 4th percentile little tiny spunky girl. You've got balance better than both your older siblings and core strength like people can't believe. You may be tiny, but you are mighty! You like to exhibit your strength Ina-style, by picking up any object, person, or animal that looks like it may challenge your strength. Small dogs at friends homes are your latest lifting feat that you're so proud of!
Joey and Ina like to call you "M&M" which they got from me calling you Em. But you really do get called a mix of things and you just roll with it.
You don't have many words yet, but you have signs and sounds to make your needs known. Your favorite words to say are dada, cheese, mama, doggy, and "nuh-uh!" You love to play dress up and live for girly dress up shoes and crowns. You also love to draw, especially on yourself!
Your favorite place to be is up in a carrier or snuggling with anyone that will hold you. But when you're snuggled out, you quickly fall right in line with acting like a big kid in all games and play. You have the appetite of a horse and often eat more at meals than your 8 year old brother.
You, my Emmy Lou, are my rosary baby. When you were a newborn and crying and we couldn't calm you, you grasped tightly onto my rosary that I was praying. And you continue to seek and receive such beautiful blessings from our Mama Mary. You play with your chewy rosary that I made you at least daily, and I can almost always distract you for a large part of mass by letting you hold one of my rosaries. You've got a special love for Mary that our family is so blessed by. <3
You do emotions big in every direction and bring much laughter and joy daily to our lives! You, just like all of our children, reflect Daddy's and my love for you most perfectly. We love you, our Emily Louise!
Monday, July 27, 2015
Jesus <3
Saturday, June 13, 2015
What I really want to say on fb sometimes
Saturday, May 30, 2015
HG adventures
So, while this pregnancy has been milder HG in comparison to my others, it has not been without complication!
For the last week I've been dealing with extreme itchiness from the pump sites. They always were itchy but not like this. Something had just changed with my body and I knew it wasn't right. I was having deep deep internal itching. Then a few days later the itching spread, then hives began, then hives began to spread up my neck... I would take benadryl to relieve the symptoms and they would return in the same order time after time after time. It was awful. I talked to many nurses, the pharmacist. All thought it would be incredibly rare to develop an allergy to the zofran now, but not impossible. Finally Friday I spoke to a doctor that felt strongly it was the zofran, wanted me to stop with the zofran and benadryl immediately. I got put on high dose steroids as my allergic reaction had progressed so far, and I'm now trying a new to me oral med for vomiting, reglan. I'm not sure how it's working because right now my body is whipped up on these steroids, so it will be at least a week before I have even a slight idea.
I still keep having where's my pump-itis? Any time I move, freaking out trying to figure out where it is so I don't pull it out of me and then I remember oh its gone. It's not gone forever though. They're giving me two weeks to see how I do keeping down the oral reglan or they will try reglan in the pump. In the mean time, my skin has began to shed off and peel in thick layers where my allergic reaction was happening. Totally gross, but interesting, too.
Just pray for my healing. I know I'll get through this and we will hopefully find a regimen that works :) but it is also mentally and physically exhausting!
Puzzled
Many days, I feel like I am a puzzle. One of those really old puzzles that's jumbled up in a box with missing pieces and pieces from other puzzles mixed in. The one you just can't bring yourself to throw away, yet, you could never put it together even if you tried.
I've felt a total mess with my health the last year. It's actually calmed down substantially since getting pregnant, but some days I still feel like it's still spinning out of control. A perfect jumbled mess of pieces. And then I remember, but I am put together, because God holds me together especially amidst everything.
I am so blessed to have a great God. I am exhausted just thinking about the next week and doctors appointments that are involved, but I will get through it. God already knows all the answers and I'm still here and breathing and alive, so life is good!
Wednesday, May 13, 2015
HG Awareness Day - May 15, 2015
Monday, April 27, 2015
Hope
"Hope
There is a little piece of glitter following me around
I see it on the carpet and I see it on the ground
that’s been following me for quite some time
guess I never noticed it before
But I know what it means, that little glitter on the floor
It’s hope.
It’s not coincidence, nope, it’s hope.
And I know that I’ve failed you
yeah I know I’ve been untrue
but that glitter on the floor
tells me it doesn’t matter any more
Cuz’ no matter how many times I fail
I’ve got hope.
This time, I’m gonna be better
and I know there’s stormy weather
Please believe in me
I will solve this mystery
and I will show you
to have hope.
It’s not coincidence, nope, it’s hope.
Someday that glitter will shine
Gonna write my rhyme until the time.
My heart’s beatin’ outta my chest
I wanna rest but that don’t impress
I gotta fight this urge
gotta get the electricity surge
I know I can do it
Beat my demons
appreciate the seasons.
I hope, hope, hope I can do it too
make all my wildest dreams come true."
Saturday, April 25, 2015
It's official "HG". BOO...
I was really hoping that I'd escape the "HG" diagnosis this pregnancy. Up until a week ago, I was still just labeled as "nausea and vomiting during pregnancy." Still gross, but the only HG on my record was "History of HG." It is only natural for me to wish that I won't get it. But, I've come to terms with it, here I am in my 5th HG pregnancy. Wow. 6th pregnancy, but my last loss was so early I hadn't developed my usual pregnancy disposition yet.
I've only dropped about 20 pounds... 28 total if you count the 8 pounds I gained in the early days of this pregnancy. It's so small compared to my other pregnancies weight loss, but that combined with the incessant puking is enough to put me back in the HG category again. Part of me wants to fall on the ground and cry about this, but most of me is glad that it is not as severe as it could be. There are worse things to be dealing with and I have survived HG before so I can get through it again. My sweet babies are worth it and every life is a gift. It's all a perspective thing. I'm sure most normal mom's would consider this pregnancy awful, but because I have felt what MORE AWFUL HG is like, more than once, I can take it comparatively and say, eh, its not that bad. I'm still able to function and leave the house most days, as well as many other things I'm thankful that I can do that I couldn't during other pregnancies.
Last night I threw up violently after eating dinner. I was taking a shower, and suddenly had to puke, and it was awful. I had vomit go up my sinuses and had bits of my dinner stuck in my sinuses after. it was just awful. I couldn't breath. I'm feeling very traumatized today. I have stuck to smoothies and Gatorade and soft foods today and taken medications even more than usual just to make sure I don't puke when my esophagus and throat and sinuses are all still so raw. I pretty much don't want to ever eat again. But I know from past experience that I will and have to. But ugh... I won't be eating THAT dinner anytime for a few years...
And for the record, I have the best husband. he has cleaned up puke pregnancy after pregnancy after pregnancy. And it seems as time goes on, my ability to control when it hits is even worse. The mess that I made last night while suffocating and having vomited food fly through my sinuses was really awful. And Rob cleaned it all up without even complaining... so to anyone that ever thinks my hubby does not do enough. I guarantee he has cleaned up more disgusting bodily fluid messes than most human beings!
Ironically, I've felt the best mood wise than I have in over a year. Yaaay, hormones. Happy hormones. Sometimes, when they aren't being moody hormones. Ha ha.
We have so many great things happening and are so very busy trying to do them all and keep up with everything that is always happening in our daily lives. It can be overwhelming, but I am thankful. Thankful despite the traumatizing vomit and this baby is growing.
Monday, April 13, 2015
In Memory of my Grammie
We had the memorial service for Grammie last Friday. Family traveled from all around the United States to gather in Charleston, South Carolina to celebrate her life. I had told my aunt in advance that I wanted to read something at the memorial - that I didn't think I could just speak from my heart like I had at my Papa's funeral, as I knew I needed to hold myself together to a certain extent if I did not want to experience definite catastrophe with my 3 kids present. Because if mama starts crying, they surely would have all started up too! Even so, my plan was not perfect, but it is the best I could think of that I could still honor my Grammie and keep my kids emotions to a minimum.
I told my Aunt Polly that I needed some thing to read. Her and my dad had been looking through my Grammies things and found a journal from about 15 years ago, and the first entry in it was perfect. It encompassed everything Grammie was to all of us -thankful, joyful, silly, loyal to her husband, loving mother, and so much more. It worked out that Emily fell asleep in the car and transferred into the sling, so I kept her in the ring sling asleep on my chest while I read from Gram's journal. As I read, I could hear Grammie's voice and how she would have read this journal out loud, and evidently that transferred to how I read it because I had many tell me I "sounded just like Evy" reading it. Despite my best laid plans, I sat down to Ina, who was sobbing in a puddle of tears and cried out in her sweet little 4 year old voice, "But I wanted to invite Grammie to my next birthday party and now she can't come!!" She continued to cry a bit and Rob and I took turns passing her and Emily, who was awakened from Ina's crying, back and forth. After the service Ina told Rob that she should have gotten to talk about Grammie on stage too just like the other grandkids did too. I was honored for Grammie that two of my cousins got up and spoke to remember Grammie after I was done. Their sweet stories touched my children especially who have known Grammie only too briefly!
Grammie's journal pages that I read:
"My Gratitude Book:
6/97 Grateful for Pete and Polly. Appreciate calls from them since we are far apart.
Thank you, God, for my life and my longevity. Mother died at 72+. Lois died at 72+. Most of my aunts on the Kheil side died in their 60's.
Thank you for a home and beds and clean linens.
Grateful for a wash machine and dryer.
Grateful for a car to take me where we want to go.
Grateful that Johnny is such a wonderful driver.
Thank you Lord for being there for me. For giving your life on the cross for me! Thank you Jesus for being my best friend.
Grateful for many friends who care about me.
Grateful for friends at the church.
I'm grateful for good food, fruits grown in California.
I'm grateful for all the gifts we've received down through the years.
25th anniversary - Silver.
50th anniversary - Gold.
Birthday gifts
Christmas gifts
Mothers day
Fathers day
Other anniversaries
I'm grateful for the great weather we have in Southern California.
We love the ocean view from our condo.
We're thankful for being able to have and drive decent cars.
We're grateful for being able to buy and use our Lawrence Welk time share which we have owned for 8 years. We've been able to share the timeshare with family and friends. We were able to celebrate or 50th anniversary there with friends and family. What a great time and we will be forever grateful for that time - Nov. 18. 1945.
One of the things I am most thankful for is that Johnny has saved us thousands of dollars by being able and capable of repairing everything. He is mechanically inclined so is also able to take care of cars except for large problems. I'm talking about stoves, refrigerators, washers, dryers, toilets, some plumbing, disposals, etc. In Illinois, he took care of the yard, the garden, sewers, etc.
Pete was a big help in the yard when we were in Ill. We were able to save a lot of money because Pete and Polly did a lot in and out of the house. Shoveling snow was a big chore in Northbrook, Ill. One of the jobs I also helped with. Thanks to God for good health. - 1970s and 1980s."
All in all, it was very nice to have all of the Froehlich and Mathews gathered together to celebrate her life. I enjoyed looking through the many well organized and labeled photos from my Grammie's life - I even found out that they went on vacation to Jacksonville early in their marriage and found that my Ina looks identical to my Grammie's sister, Lois. We are all excited for the new babies that are joining our family this year - Dream and Carver are expecting a baby boy in July, and us expecting another sweet baby in November. Sharing the joy of babies on the way with family who were truly excited was a wonderful blessing of this trip.
Tuesday, April 7, 2015
blessed for the vomit
Intuition
God guides our intuition and there is much to be said about that. Exhausted, but that just comes to mind. Always trust God. And always trust that inner voice.














