Saturday, April 23, 2016
Half a year! Robin is 6 months!
Well, we've blinked and now we have a 9 year old, a 5 year old, a 2 year old, and a 6 month old. They are all growing and changing and learning so fast. I do not have all his stats, because his 6 month well check is next week, so I'll update this next week.
Today, Robin is 6 months old. He has 6 teeth, making him my 2nd toothiest baby. Joey still wins for making it to 6 months with 8 teeth. Teeth 7 and 8 are not far from coming through also for Robin and this mama is eager for that to happen. He is a fast teether, but he is also a biter. He bites while he nurses consistently and it is exhausting. He also is a saliva factory thanks to teething and his favorite saliva activity is bubble blowing. All day long, he blows bubbles with his spit. He's such a silly baby. I started calling him "Bubbles" as a nickname a few months ago when he started this and now the kids all call him this and sometimes when other people call him by his actual name they correct him and say, "No, his name is bubbles." Haha. He knows he is Robin though too.
I still am pumping and giving him three fortified bottles a day, and the girls especially enjoy helping with those feeds (not just my girls, but any visiting friends too, hehe). He is thriving and doing great though so hopefully we will be able to cut back on that soon.
He is seriously the happiest giggliest baby I have ever known in all my life. We were at the doctor the other day for me and I had him wrapped and he was just laughing hysterically like a loud crazy hyena. Not for any reason, just because I was smiling at him.
He likes to grab his feet and rub the sides of his belly when he does not have clothes on (I think it tickles) :) Robin loves to be held and loved by all his friends and family. The only person he is still a bit reluctantly cautious about is Emmy and well she is an unpredictable 2 year old that is having to share her Mommy with Robin, so he has all the reason to be cautious! They have their sweet moments too though.
He has just started to roll a little bit. He does a bit of a half roll. He will lift his body up when he's on my chest and he is very strong especially for being an early babe and all that he went through! Occasionally when I meet another baby that was born full term around the same time as him, my heart does sink a bit, but he is simply perfection. He will get there at his own pace, and in the mean time he will snuggle and giggle and blow bubbles at me. What more could I ask for? :)
He is such love! We are so blessed.
Thursday, December 31, 2015
2015: Thank you for the LOVE
As I lay here snuggling 2 of my 4 kids to sleep, it amazes me to think of everything that has happened in the last year. We have been so blessed and our hearts (and often our arms!) are full.
2015 brought us two sweet babies, our new years 2014 baby who went to God too soon, and the other our sweet miracle baby Robin. As we closed out 2014, Emmy was our little baby! How quickly things change...
Joey is 8, almost 9, and transitioned this year (third grade) from homeschooling into the public school system - at a charter school. It was a big change for him, but it has been a very positive experience for him so far. He loves his school and his teacher, and while I don't love everything, I love that he is happy and learning. He loves to read, especially Magic Treehouse books and anything about Pope Francis, the Catholic Church, or the bible! He's such an energetic sweet affectionate boy. He is an awesome big brother. In May 2015, he made his first communion and he eagerly goes to confession and receives communion often and he inspires Rob and me to do the same. Joey spent his first week away this summer at sleep away camp with the order of the Home of the Mother. When I saw him after the week, his growth in reverence and love for Christ brought me to tears. In 2016, he wants to finish ALL his new Christmas books and learn to play the electric guitar.
Ina is 4, almost 5. She had a Dragon Tales birthday party early in the year that she so graciously shared with her baby sister Emmy. She wants to do all things that Joey does and looks up to him so much! She's my little artist. A day doesn't go by where she isn't covered head to toes in an art project. She also loves to sing and has been learning to play the marimba. These two things translate into: she challenges me daily in patience with artistic messes and original songs that she must sing constantly and loudly! Recently, she mastered riding her bicycle without training wheels! She loves to talk and express herself. Ina also has been a sweet mommy to her pet bunny this year - first Spotlight and now her bunny Kate. She sings to her bunny every morning when she opens her hutch and loves her bunny so much! Her favorite thing about having a new baby brother is when she gets to help feed him mama's milk in a bottle. She says in 2016, she wants to practice painting some more.
Emmy is 22 months. I can't believe she's almost 2! I blinked and had another baby and now she's so big, but not too big for our love. Well, actually she's really little but full of personality! She's tiny at only 23 pounds. She continues to be my highest need child, but she knows we all love her so. She's a Mama's girl, and can often be found hanging from my skirt or leg if she isn't in my arms. She had a big Ascher first "accomplishment" this year: first child to break a bone. She's the do it big type, so she had a summer skull fracture at the pool and then added in a few leg fractures at the park. She's thankfully all healed now. She's had a year full of allergies and rashes that have left many doctors puzzled and we're still searching for answers. Emmy loves doc mcstuffins too thanks to her big sister Ina. She's developed a love for Princess Elsa that is all her own. She calls her "ella" because she cannot pronounce the letter s yet. Confusingly, she also calls Cinderella "ella." She loves to dress up and be extra pretty. Emmy loves to be worn still, as often as can be. I thought she'd be most jealous of the baby nursing, but she actually has more jealously over him being worn. Luckily, that's easily remedied, they can both be worn! She glares suspiciously at most people, but there are certain people she will give a special Emmy smile to.
Robin is just over 2 months and he's my tiny 7 pounds of joy. He loves to snuggle and rest, but he's also often watching and observing all of the action from his siblings around him. Joey and Ina call him "Tiny" as a nickname. Robin loves to smile and coo. He's my sweet rainbow baby. He's my miracle baby and such a strong amazing fighter. We're still healing from his birth, which was full of many surprises. He's my easiest baby by far, even including the extra difficult recovery from his birth. He's got an extra special bond with Daddy that our other babies didn't have this early. Robin brings all of our family great love and joy.
Wow... It really has been quite the year. So many things accomplished, yet so many more that we are in the midst of and moving forward and through every moment, hour, day. Every goal may not always come exactly to fruition how we pictured it, but when it comes to love, we have it made. We are so loved and get to give our love so much, and for that, we are blessed.
This post wouldn't be complete without taking the opportunity for thanks to all of the amazing people in our lives. Thank you for loving and blessing us. The list of love we've received this year is truly endless. I might be able to name everyone on a less sleep deprived mind, but names aren't necessary. Thank you for the love - love during and after my miscarriage, love during Robin's pregnancy and HG, love during my hospitalization with pneumonia, love during Robin's birth and my continued recovery, love for my husband and children when I couldn't be there to love them, love through prayers, love for my pets and my home...
Thank you for the love and allowing us to love you. <3 <3 <3 <3
Wednesday, November 4, 2015
Baby Robin, our Miracle Baby
Early in this pregnancy, I knew that this pregnancy would be different than the others. I really had no idea how much different though!
In between my pregnancy with Emmy and my pregnancy with Robin, I had an early miscarriage. Before I got pregnant I was seeing a hematologist and then in early pregnancy, I was also diagnosed with an unnamed platelet aggregation disorder. Basically my blood takes 8x the normal time to clot and behaves as if I'm on high dose aspirin. I knew because of this that I wanted to birth in a hospital. This wasn't my plan, but it was God's. I had appointments with a few recommended ob practices around town, and ultimately wound up at the same one that I was with for Joey's pregnancy. One particular doctor there was highly recommended and had knowledge of my specific medical issues. Plus, with a history of precipitous labors combined with the bleeding disorder, I needed to be at the nearest hospital or I'd likely wind up there anyway in an emergency.
Early pregnancy didn't bring too many surprises for me. I had moderate to severe hyperemesis gravidarum, depending on who you ask. I was on home health with a Zofran pump until I developed an allergy to Zofran out of no where. Hives. Constant hives and itching. So then I went on Reglan, which caused some abnormalities with my heart on EEG, and I was cautioned to only take it as little as possible. I was also on Diclegis from early on, which really did help take the edge off the HG.
I made it to the third trimester and both the abnormalities on my heart and the baby's heart were gone. Not gone forever, I was cautioned, but appeared to be gone on testing. Shortly after the third trimester began, my HG started to increase again and I'd have a few days a week with all day cyclical vomiting. Most days I only puked 2-3 times and forced myself to eat and drink anything that I could. I still continued to lose weight.
Then at 29 weeks, I thought I had a cold. My kids all had a cold. The vomiting increased and I was quickly dehydrated enough to need the hospital. I was seen in L&D, treated for dehydration, and discharged. The nurse kept telling me to see my doctor as soon as possible because it was likely I had an infection. Two days later I saw my family doctor, had an xray, and found out I had pneumonia. I often woke up with vomit in my mouth, especially the last week with being so sick so it wasn't that surprising. It didn't go away with treatment at home, so I was admitted to the hospital for aspiration pneoumonia and stayed there for 8 days. I was very sick. The respiratory therapist who also worked in the NICU thought that I'd end up having the baby then. Thankfully he stayed in my belly, the pneumonia improved enough to go home and continue treatment at home. I tried to wean off of the medications for the pneumonia/ asthma symptoms many times but I was not able to. I'd get close and then I'd nearly have to go back to the hospital. Ultimately I had to stay on many medications at low doses. - I had to breathe.
Since about 33 weeks, I showed signs of preeclampsia many times and did many 24 hour urine and lab work. My liver numbers were getting worse and worse. My blood pressure was getting higher. At 35.5 weeks, I was officially diagnosed with preeclampsia and was told my liver appeared to be in failure from the lab values. - the liver issues could be from the severe HG, could be from the meds from the pneumonia, or it could be a component of the preeclampsia. I also had gained 9 pounds in a week - with at least 3 days in that week being near constant violent vomiting. There was no way that weight gain was anything but fluid retention. We discussed induction at this point at 37 weeks. I was a bit sad, but felt it was completely medically necessary, felt horribly sick, and knew my body could not continue on being pregnant much longer.
On the day of 36 weeks 1 day, I woke up feeling very very sick. I had a headache. My vision was blurred and had spots in it. I chocked it up to exhaustion and convinced the girls to nap with me. After a very long nap, I felt worse. My body was heavy and it was hard to walk through the house. For a few hours, I started to feel as if my water had broken. Not a full rupture, but enough that it concerned me, a nice steady slow trickle. I waited for hubby to get home and then took my blood pressure, which was very high. I called my ob and they wanted me to come into the hospital, not surprisingly.
Arriving at the hospital around 7pm, they ran tests on my urine and blood, monitored the baby, and tested for fluid. We waited on the results. Since I had a slow leak of amniotic fluid, and my lab work had gotten worse, so I was being admitted, given medication for my blood pressure and hooked up to pitocin. I had three sweet friends join me, one to take photos and the other two for support as my doulas. They were all able to come, which made me very happy. :)
I was 3 cm dilated, and the doctor broke my water the rest of the way. She tried to get internal monitoring leads, but was unsuccessful. The nurse continued to try to track Robin with the monitoring on my belly, but he has always been very active, and kept moving away. After about 20 minutes, she said she knew I wasn't supposed to be checked yet but she wanted to check me. She checked me and my umbilical cord had prolapsed. She immediately paged the doctor, and kept repeating, "I can't reach his head. I can't reach the head." I knew at this moment I'd be getting a csection, but by God's grace, I felt very very calm and at peace about it. I really felt like, this is how it was supposed to happen and how it would have happened regardless of preceding events. Many nurses came into my room, every single one of them trying to get his head off his cord without success. The anesthesiologist came in and had a brief discussion with me and it was quickly decided that I'd be put under general because of my medical history and she said, "there's no time anyway" in reference for there being time for a spinal. Another very tall nurse tried to reach the head and she couldn't, at which point they said we needed to go and quickly headed to the OR. As they were taking me my hubby asked if the baby was in distress and he was told yes. Surrounded by many nurses, they were trying to push me quickly down the hall, but the nurse with her hand up my cervix wasn't moving fast enough. Another nurse suggested she stand on the wheel. As she did this, climbing on the wheel gave her enough leverage that she yelled that she got the head - he was finally no longer compressing his umbilical cord. Everyone sighed big signs of relief and they ran the rest of the way to the OR.
I was very quickly prepped for surgery, got moved onto the OR table, and through all this the nurse stood on top of me, holding Robin's head up so he wouldn't compress his cord further. I felt the ob ready to cut, and the anesthesiologist said three times "just don't forget she doesn't have a spinal!" - and I giggled in my head and thanked her for reminding them that, said a hail mary, and the next thing I knew I was waking up a few hours later in recovery. While I was out, I dreamt about being at adoration - which was likely because we were just having a conversation about adoration with my friends in the room while I was in labor, but it made for a very peaceful "rest" while everyone took care of me and baby
I was told that 2 mins after I was knocked out, my baby Robin arrived screaming with 9 and 9 apgars. The nurse who had gotten his head off his cord had saved his life. Looking at his umbilical cord blood work later, he was very close to having no oxygen. He was born at 3:15 am on 10-23-15, 36 weeks 2 days, 6 lbs 0 oz and 18.7 inches. Rob got to love on him in the nursery while they finished my surgery. Robin had some problems with his blood sugar right after birth, but my friends and hubby insisted I'd want to nurse him, so they kept testing and waiting.
When my csection was done, my dr first was going to try to do a low transverse incision, because she felt there was time since his head was being held up off the cord, but after cutting part way noted that my abdomen had fluid from my liver in it. She then cut me with a classical incision, vertically, and got baby out quickly so that she could save me. I really feel like this is how I was meant to birth this time, even though it's so far from what we expected. I can't even imagine if I had birthed vaginally, and then my body had to find a way to heal my liver. I was given platelets as a precaution, and an amazing precaution at that. My blood work immediately after the surgery was nearly the same as before surgery, and at 24 hours my liver values were normal again. I woke up in recovery and looked down and saw my bandages and immediately thought, "no! My henna!" :) haha...
My hubby came to me and told me what pain meds they wanted to give me and expressed concern over using it while nursing. I told him to look it up in Lactmed on my phone. The anesthesiologist was like, "we support whatever choice you make, but you've had no pain meds, you are going to be in lots of pain!" While we were deciding about that they called and said I needed to nurse now or the baby needed formula. I said to bring me my baby. The nurse explained to me that I was going to be in alot of pain if I moved at all and I said if he needs to nurse bring him here. They helped me sit the bed up and I got to meet and nurse my sweet baby. <3 We figured out which pain med we felt most comfortable with and waited for them to bring the pain pump. I was also still getting a magnesium drip for the preeclampsia which made me feel pretty weak, but I just sat there and nursed Robin as much as he would nurse. After a couple hours, I was brought back to my room holding and nursing baby.
My OB was so sweet and compassionate and really felt bad that my fourth birth went this way. She didn't need to be, but it was very sweet. I joked to her that I had almost every birth experience possible now - induced vaginal birth, two out of hospital vaginal births (one a water birth, one not), and now an emergency csection. Ha!
Rob started to feel sick a few hours after I was back in the room. Ina had been sick with a bug a couple days before and I didn't want him to get me or the baby sick - that's the last thing we needed after all of this! I sent him home. The nurse told me that since I'm on magnesium for a minimum of 24 hours, if someone else was not present in the room with me they would take my baby to the nursery and bring him to me to eat. Noooo... you aren't taking my baby! My awesome friends and family quickly worked to help line up a rotation of guests so that baby Robin and I weren't left alone. The nurses all said I was the most popular patient they've ever had, and baby Robin and I were surrounded with love and care. Poor daddy was at home and very sick. It was hard to not have him with me but I'm glad he went home so we didn't get sick.
I tried so hard to keep him on just breastmilk, mine and others, but ultimately had to supplement with some formula for his blood sugar and also bilirubin. Despite this, my milk started transitioning from colostrum within 24 hours and by 48 hours i had full blown milk. The hospital had a great pump that had a premie chip in it that helped alot too. One of the tests they required my baby to pass was a 90 minute car seat test. This ended up being the test nightmares were made of. The nurses weren't putting my convertible seat at the same angle it would be in the car and I couldn't get anyone to listen to me. They kept telling me to get the base. It doesn't have a base, but it was a proper seat. When he failed, I was told to buy a new seat without any recommendations or info. We brought in an infant seat. He actually fit better in my convertible. But he failed again. The neonatalogist then admitted him to the nicu, insisting that he must be desating the rest of the time and that I just "wasn't noticing" for the 4 days he was in my room. I've had a baby with desating issues before, I would have known if my baby was having breathing problems. Still, we really had no choice. Anytime we questioned the doctor and expected to participate in our child's medical decisions, she threw out "you don't want a DEAD BABY" and talked to us like we were idiots. He stayed in the nicu for 3 days, with every test coming back normal and one excuse after another to keep him there. On the second day she said his body temp ran lower and that this was a "premie thing" and put him in the isolet. That day the nurses who spoke to us were very rude. I wasn't allowed to hold him skin to skin, even though that obviously was why he had no temp regulation problems with me in room, because he was being held and loved by all! Finally on the third day they repeated the test with me at his side and passed. It took them 5 hours after that to discharge us, but we were happy, home with our baby and our other sweet kids. Four weeks earlier than we had planned, but perfect nonetheless. <3 <3 <3 <3
Monday, October 5, 2015
Breathing and baby and more, oh my!
Wednesday, September 23, 2015
Hyperemesis gravidarum sucks, but aspiration pneumonia on top of that sucks more!
So, the fact that I get some level of hyperemesis gravidarum during my pregnancies is no secret. It sucks, but I've suffered through it before and feel like even when it is really bad, the suffering is only temporary.
During past pregnancies, one of my personal "my hg is getting bad" limits is when I wake up from a deep sleep barfing on myself. It's usually a sign that I need to increase medication, I'm too dehydrated, or need other help. This pregnancy I developed an allergy to Zofran that I didn't have before, so that cut out the most typical treatment for HG, leaving me with 3 other meds for treatment. One of the meds I was put on, Reglan, can and has affected my heart some, and so I've been advised to take it only if absolutely necessary. As a result, I've been less likely to medicate myself for my nausea and vomiting during this pregnancy unless I know I'll have a very hard day or if I've puked more than 3 times in the first hour or so of the day. But, as a result, I haven't been medicating myself extra when I'm waking from my sleep with vomit in my mouth.
About 2.5 weeks ago, I caught a minor head cold that my kids had and the extra production of mucus triggered more and more vomiting. 15 days ago, at 5 pm, I had a high fever of 103 hit me suddenly and I was quickly in bed with chills. I still thought it could be cold related but maybe had gone to a sinus infection or bronchitis. I spent the next two days acutely ill with high fever and constant vomiting. Saturday evening I noticed my urine was very concentrated and I called my ob to go into the hospital for fluids. L&d treated me for severe dehydration, the ob didn't come in to examine me but I was advised to go to primary care on Monday.... so I did that. Primary care doc said I sounded awful and discussed the risks/benefits of a chest xray at 30 weeks pregnant and I decided to do the xray, which showed double pneumonia. I went on two antibiotics at home, and improved slightly within the first 24 hours and then continued to worsen. Saw primary care again on Thursday and he said I needed to go to the hospital. When l&d checked me in, my primary care had spoken to my ob, so they had a pulmonology Dr and infectious disease Dr ready to see me, and they've been carefully following me the entire time I've been here.
At first they were exploring a "is this community acquired pneumonia or aspiration pneumonia" route, but after more testing came back, the infectious disease doc said he was pretty certain this was aspiration pneumonia. I'm on day 7 in the hospital, and it is still very difficult for me to breathe. The last two days I've improved instead of worsened though, so I am very happy about that. Without doing more radiology testing, they can't say for sure if the pneumonia is completely gone, but it isn't showing up on xray anymore but there are areas on xray that show alot of scarring and areas where my lungs will just not inflate when I take a deep breath. The Dr explained it as how the lungs heal typically is they expand from the bottom and push the crud out, but because I have an almost full term baby pushing up against my lungs, my lungs are trying to expand but cant. They're just stuck spasming instead. the specialist doctors have been excellent though and have managed everything very well, I just work it was working faster even with their aggressive approach!
In my time here I've been on 3 iv antibiotics, that they've gradually transitioned to oral as I've shown improvement. I've been on high dose iv steroids to help the spasm, which right now they're trying to wean down to see how it goes or of I worsen with those going down. I've also been on every 4 hour breathing treatments of a bunch of different kinds. When they admitted me, they were pretty sure I'd end up in the icu and even put me in an icu bed in a regular room, but luckily so far I've been able to stay out of the icu. They said if my o2 sats are consistently below 95, they'll discuss the icu. I had one day, on Sunday, that they were in the mid to high 80s a couple days ago and they discussed oxygen briefly but were about to get them to increase with more steroids.
Through all of this, baby Robin is doing well. He's measuring nearly 4 pounds on ultrasound and he's 32 weeks gestation today! I can't believe we're still in this hospital, but even with how much I hate hospitals I know it's the best place to be seeing as I get winded just going to the bathroom. early induction or taking the baby early has been discussed some, but only as a measure if I worsen or if Robin isn't doing well from me being so bad. I tore a muscle in my abdomen on Saturday from coughing and l&d were in here in a rush and all sorts of possibilities were being discussed. The biggest concern was that my pain was coming from inside my uterus, not outside. Since all is still holding up well inside the uterus, Robin will stay there and continue to grow. But they are monitoring him very closely to make sure that doesn't change. Ina saw a newborn on the floor recently and said she wished Robin was out now and I was like, no no no. Then he would be in his own hospital room (the nicu). I'd rather him stay kicking away in my belly even if it means it is harder for my lungs to heal and harder for my to breathe.
Rob and the kids have come to visit daily, until yesterday as he and Ina are sick. Poor Ina is by far the most stressed out about me being in the hospital for so long so it doesn't surprise me that she is sick. It's been two days since I've seen Emmy, which stinks. She's so little she doesn't really understand, but rob says she asks for me alot. :( Rob and I got to celebrate our 10th wedding anniversary with me in the hospital here. I think we need a real celebration when I'm well! I've had many sweet visitors and appreciate all of them so much. Fr. Bernie came and gave me the anointing of the sick and I've had Jesus brought to me a few times too. <3
Thank you all for your continued prayers, love, help with childcare and meals! <3 I never could have imagined getting so sick while pregnant.... and this is coming from someone who barfs daily my entire pregnancies. Perspective... hg does definitely suck, but aspiration pneumonia, you win the suck award! You suck. But, we will get through this too.
Love <3
Sunday, August 16, 2015
Emily Louise 18 months
Happy 18 months tonight to my sweet Emily Louise! <3
You still fight sleep more than any baby I've ever known. Eighteen months of sleep fighting screaming anytime it's time for a rest. I do get it, you want to be awake constantly so that you can constantly take in every aspect of your surroundings. Your sleep hygiene has improved ever so slightly in the last two months, but by saying that I mean you sometimes once a week will remember you're a baby and actually take a nap, or you'll wake up only 4 times at night instead of 12. I'm sure one day I'll laugh remembering our years of no sleep together.
You are about to be a big sister in 3 months, but you really have no idea. Your baby brother Robin kicks you often when you're laying on my belly, but you either don't notice or you don't want to acknowledge that he's there.
You finally passed 20 lbs recently, but you're still my 4th percentile little tiny spunky girl. You've got balance better than both your older siblings and core strength like people can't believe. You may be tiny, but you are mighty! You like to exhibit your strength Ina-style, by picking up any object, person, or animal that looks like it may challenge your strength. Small dogs at friends homes are your latest lifting feat that you're so proud of!
Joey and Ina like to call you "M&M" which they got from me calling you Em. But you really do get called a mix of things and you just roll with it.
You don't have many words yet, but you have signs and sounds to make your needs known. Your favorite words to say are dada, cheese, mama, doggy, and "nuh-uh!" You love to play dress up and live for girly dress up shoes and crowns. You also love to draw, especially on yourself!
Your favorite place to be is up in a carrier or snuggling with anyone that will hold you. But when you're snuggled out, you quickly fall right in line with acting like a big kid in all games and play. You have the appetite of a horse and often eat more at meals than your 8 year old brother.
You, my Emmy Lou, are my rosary baby. When you were a newborn and crying and we couldn't calm you, you grasped tightly onto my rosary that I was praying. And you continue to seek and receive such beautiful blessings from our Mama Mary. You play with your chewy rosary that I made you at least daily, and I can almost always distract you for a large part of mass by letting you hold one of my rosaries. You've got a special love for Mary that our family is so blessed by. <3
You do emotions big in every direction and bring much laughter and joy daily to our lives! You, just like all of our children, reflect Daddy's and my love for you most perfectly. We love you, our Emily Louise!
Monday, July 27, 2015
Jesus <3
Saturday, June 13, 2015
What I really want to say on fb sometimes
Saturday, May 30, 2015
HG adventures
So, while this pregnancy has been milder HG in comparison to my others, it has not been without complication!
For the last week I've been dealing with extreme itchiness from the pump sites. They always were itchy but not like this. Something had just changed with my body and I knew it wasn't right. I was having deep deep internal itching. Then a few days later the itching spread, then hives began, then hives began to spread up my neck... I would take benadryl to relieve the symptoms and they would return in the same order time after time after time. It was awful. I talked to many nurses, the pharmacist. All thought it would be incredibly rare to develop an allergy to the zofran now, but not impossible. Finally Friday I spoke to a doctor that felt strongly it was the zofran, wanted me to stop with the zofran and benadryl immediately. I got put on high dose steroids as my allergic reaction had progressed so far, and I'm now trying a new to me oral med for vomiting, reglan. I'm not sure how it's working because right now my body is whipped up on these steroids, so it will be at least a week before I have even a slight idea.
I still keep having where's my pump-itis? Any time I move, freaking out trying to figure out where it is so I don't pull it out of me and then I remember oh its gone. It's not gone forever though. They're giving me two weeks to see how I do keeping down the oral reglan or they will try reglan in the pump. In the mean time, my skin has began to shed off and peel in thick layers where my allergic reaction was happening. Totally gross, but interesting, too.
Just pray for my healing. I know I'll get through this and we will hopefully find a regimen that works :) but it is also mentally and physically exhausting!
Puzzled
Many days, I feel like I am a puzzle. One of those really old puzzles that's jumbled up in a box with missing pieces and pieces from other puzzles mixed in. The one you just can't bring yourself to throw away, yet, you could never put it together even if you tried.
I've felt a total mess with my health the last year. It's actually calmed down substantially since getting pregnant, but some days I still feel like it's still spinning out of control. A perfect jumbled mess of pieces. And then I remember, but I am put together, because God holds me together especially amidst everything.
I am so blessed to have a great God. I am exhausted just thinking about the next week and doctors appointments that are involved, but I will get through it. God already knows all the answers and I'm still here and breathing and alive, so life is good!
Wednesday, May 13, 2015
HG Awareness Day - May 15, 2015
Monday, April 27, 2015
Hope
"Hope
There is a little piece of glitter following me around
I see it on the carpet and I see it on the ground
that’s been following me for quite some time
guess I never noticed it before
But I know what it means, that little glitter on the floor
It’s hope.
It’s not coincidence, nope, it’s hope.
And I know that I’ve failed you
yeah I know I’ve been untrue
but that glitter on the floor
tells me it doesn’t matter any more
Cuz’ no matter how many times I fail
I’ve got hope.
This time, I’m gonna be better
and I know there’s stormy weather
Please believe in me
I will solve this mystery
and I will show you
to have hope.
It’s not coincidence, nope, it’s hope.
Someday that glitter will shine
Gonna write my rhyme until the time.
My heart’s beatin’ outta my chest
I wanna rest but that don’t impress
I gotta fight this urge
gotta get the electricity surge
I know I can do it
Beat my demons
appreciate the seasons.
I hope, hope, hope I can do it too
make all my wildest dreams come true."
Saturday, April 25, 2015
It's official "HG". BOO...
I was really hoping that I'd escape the "HG" diagnosis this pregnancy. Up until a week ago, I was still just labeled as "nausea and vomiting during pregnancy." Still gross, but the only HG on my record was "History of HG." It is only natural for me to wish that I won't get it. But, I've come to terms with it, here I am in my 5th HG pregnancy. Wow. 6th pregnancy, but my last loss was so early I hadn't developed my usual pregnancy disposition yet.
I've only dropped about 20 pounds... 28 total if you count the 8 pounds I gained in the early days of this pregnancy. It's so small compared to my other pregnancies weight loss, but that combined with the incessant puking is enough to put me back in the HG category again. Part of me wants to fall on the ground and cry about this, but most of me is glad that it is not as severe as it could be. There are worse things to be dealing with and I have survived HG before so I can get through it again. My sweet babies are worth it and every life is a gift. It's all a perspective thing. I'm sure most normal mom's would consider this pregnancy awful, but because I have felt what MORE AWFUL HG is like, more than once, I can take it comparatively and say, eh, its not that bad. I'm still able to function and leave the house most days, as well as many other things I'm thankful that I can do that I couldn't during other pregnancies.
Last night I threw up violently after eating dinner. I was taking a shower, and suddenly had to puke, and it was awful. I had vomit go up my sinuses and had bits of my dinner stuck in my sinuses after. it was just awful. I couldn't breath. I'm feeling very traumatized today. I have stuck to smoothies and Gatorade and soft foods today and taken medications even more than usual just to make sure I don't puke when my esophagus and throat and sinuses are all still so raw. I pretty much don't want to ever eat again. But I know from past experience that I will and have to. But ugh... I won't be eating THAT dinner anytime for a few years...
And for the record, I have the best husband. he has cleaned up puke pregnancy after pregnancy after pregnancy. And it seems as time goes on, my ability to control when it hits is even worse. The mess that I made last night while suffocating and having vomited food fly through my sinuses was really awful. And Rob cleaned it all up without even complaining... so to anyone that ever thinks my hubby does not do enough. I guarantee he has cleaned up more disgusting bodily fluid messes than most human beings!
Ironically, I've felt the best mood wise than I have in over a year. Yaaay, hormones. Happy hormones. Sometimes, when they aren't being moody hormones. Ha ha.
We have so many great things happening and are so very busy trying to do them all and keep up with everything that is always happening in our daily lives. It can be overwhelming, but I am thankful. Thankful despite the traumatizing vomit and this baby is growing.
Monday, April 13, 2015
In Memory of my Grammie
We had the memorial service for Grammie last Friday. Family traveled from all around the United States to gather in Charleston, South Carolina to celebrate her life. I had told my aunt in advance that I wanted to read something at the memorial - that I didn't think I could just speak from my heart like I had at my Papa's funeral, as I knew I needed to hold myself together to a certain extent if I did not want to experience definite catastrophe with my 3 kids present. Because if mama starts crying, they surely would have all started up too! Even so, my plan was not perfect, but it is the best I could think of that I could still honor my Grammie and keep my kids emotions to a minimum.
I told my Aunt Polly that I needed some thing to read. Her and my dad had been looking through my Grammies things and found a journal from about 15 years ago, and the first entry in it was perfect. It encompassed everything Grammie was to all of us -thankful, joyful, silly, loyal to her husband, loving mother, and so much more. It worked out that Emily fell asleep in the car and transferred into the sling, so I kept her in the ring sling asleep on my chest while I read from Gram's journal. As I read, I could hear Grammie's voice and how she would have read this journal out loud, and evidently that transferred to how I read it because I had many tell me I "sounded just like Evy" reading it. Despite my best laid plans, I sat down to Ina, who was sobbing in a puddle of tears and cried out in her sweet little 4 year old voice, "But I wanted to invite Grammie to my next birthday party and now she can't come!!" She continued to cry a bit and Rob and I took turns passing her and Emily, who was awakened from Ina's crying, back and forth. After the service Ina told Rob that she should have gotten to talk about Grammie on stage too just like the other grandkids did too. I was honored for Grammie that two of my cousins got up and spoke to remember Grammie after I was done. Their sweet stories touched my children especially who have known Grammie only too briefly!
Grammie's journal pages that I read:
"My Gratitude Book:
6/97 Grateful for Pete and Polly. Appreciate calls from them since we are far apart.
Thank you, God, for my life and my longevity. Mother died at 72+. Lois died at 72+. Most of my aunts on the Kheil side died in their 60's.
Thank you for a home and beds and clean linens.
Grateful for a wash machine and dryer.
Grateful for a car to take me where we want to go.
Grateful that Johnny is such a wonderful driver.
Thank you Lord for being there for me. For giving your life on the cross for me! Thank you Jesus for being my best friend.
Grateful for many friends who care about me.
Grateful for friends at the church.
I'm grateful for good food, fruits grown in California.
I'm grateful for all the gifts we've received down through the years.
25th anniversary - Silver.
50th anniversary - Gold.
Birthday gifts
Christmas gifts
Mothers day
Fathers day
Other anniversaries
I'm grateful for the great weather we have in Southern California.
We love the ocean view from our condo.
We're thankful for being able to have and drive decent cars.
We're grateful for being able to buy and use our Lawrence Welk time share which we have owned for 8 years. We've been able to share the timeshare with family and friends. We were able to celebrate or 50th anniversary there with friends and family. What a great time and we will be forever grateful for that time - Nov. 18. 1945.
One of the things I am most thankful for is that Johnny has saved us thousands of dollars by being able and capable of repairing everything. He is mechanically inclined so is also able to take care of cars except for large problems. I'm talking about stoves, refrigerators, washers, dryers, toilets, some plumbing, disposals, etc. In Illinois, he took care of the yard, the garden, sewers, etc.
Pete was a big help in the yard when we were in Ill. We were able to save a lot of money because Pete and Polly did a lot in and out of the house. Shoveling snow was a big chore in Northbrook, Ill. One of the jobs I also helped with. Thanks to God for good health. - 1970s and 1980s."
All in all, it was very nice to have all of the Froehlich and Mathews gathered together to celebrate her life. I enjoyed looking through the many well organized and labeled photos from my Grammie's life - I even found out that they went on vacation to Jacksonville early in their marriage and found that my Ina looks identical to my Grammie's sister, Lois. We are all excited for the new babies that are joining our family this year - Dream and Carver are expecting a baby boy in July, and us expecting another sweet baby in November. Sharing the joy of babies on the way with family who were truly excited was a wonderful blessing of this trip.
Tuesday, April 7, 2015
blessed for the vomit
Intuition
God guides our intuition and there is much to be said about that. Exhausted, but that just comes to mind. Always trust God. And always trust that inner voice.















